Hello, I am Dyuti, parent of a sweet autistic nonverbal child Aum.
Aum is thirteen and our world has changed so much since his entry in this world thirteen years ago.
We were so excited and full of hope and dreams with expansion of our family. My older son Dev was just waiting to play and share his love with his younger brother.
First year was not very unusual except some red flags about his delayed milestones.
Around his first birthday things started to change. Happy, chubby Aum changed in to fussy, constantly crying machine, could not tolerate our holding him or any social interaction. Some eye rolling started too.
Later in the second year of life, he was diagnosed with complex partial seizures and our steep journey started, little we know was going to be steeper. When he was two and half year old, I thought he was ready for toddler preschool. He was recovering from seizures, getting more sociable. I was in a rude awakening. He got so fussy and inconsolable as a result of social anxiety. Autism journey started which I wasn’t aware at the time. Over the time it became clearer , eventually he was diagnosed with severe autism.
He is able to attend school since 2014 August, thanks to his very kindergarten classroom teacher. With her help and some medications, school attendance became possible. Since than Aum has grown a lot and is able to enjoy school. So I have some time for writing this blog.
Our dreams have morphed in to new dreams of just able to go to park or beach with positive experiences with Aum rather than world travel or overachieving jobs.
Our world became quieter and smaller.
Everyday struggles are still going on, it changes as he grows.
My husband and I both are very tired s frankly we feel his baby stage is never ending.
At he same time we see world so differently now and able to enjoy his innocence and sweetness. He has opened our heart in a way that’s impossible to describe in words.
Patience and unconditional love are cornerstones of raising such a complex and yet beautiful charming boy.
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